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کاربرد نوع شرط:
- جایگاه : پژوهشی
- مجله: International Journal of Pediatrics
- نوع مقاله: Journal Article
- کلمات کلیدی: Iran,Meta-Analysis,Health-related quality of life,Thalassemia Major
- چکیده:
- چکیده انگلیسی: Background: Thalassemia is the most common genetic disorder in Iran. High treatment costs, the use of iron chelators, comorbidities and periodic visits affect the quality of life in these patients. The present study was conducted to assess the quality of life, according to the Short healthy survey (SF-36), in Iranian patients with thalassemia major.
Materials and Methods
In this meta-analysis, search was done in national and international databases, including SID, MagIran, Google Scholar, Web of Science, Medline (via PubMed), and Scopus until March 2018. The searched papers were screened and summarized by two independent reviewers. Based on the heterogeneity among the studies, the data were analyzed using the random effects model. Data were analyzed using STATA version 14.0.
Results
Data from 18 studies, including 2,897 patients (age group 12-45 years old); were entered in the final analysis. The mean mental component scale in patients with thalassemia major (57.30; 95% confidence interval: 50.31-64.30) was lower than the mean physical component scale (62.77, 95% CI: 52.63-70.91). The mental component scale increased significantly between 2009 and 2017 (as the year of publication increased) (P = 0.043). The highest (74.77), and lowest (60.94) subscale scores of quality of life were related to physical functioning and general health, respectively.
Conclusion
Patients with thalassemia major have a relatively low quality of life. Providing strategies for improving the quality of life in this group of patients (particularly in terms of mental components) seems necessary.- انتشار مقاله: 18-03-1397
- نویسندگان: Mitra Goli,Shahin Salarvand,Fazel Dehvan,Houshyar Ghafouri,Sahar Dalvand,Reza Ghanei Gheshlagh,Amir Vahedian-azimi
- مشاهده
- جایگاه : پژوهشی
- مجله: Asian Pacific Journal of Cancer Prevention
- نوع مقاله: Journal Article
- کلمات کلیدی: palliative care,health system of Iran,non-communicable disease,elderly and Public Health Model
- چکیده:
- چکیده انگلیسی: Objectives: In the near future, the health system of Iran will face serious public health challenges means increase in the elderly population and the rate of chronic diseases. Therefore, it is anticipated that providing palliative care for chronic diseases will be one of the priorities of the country’s health system. The purpose of the present study was to explain the present status and the future challenges of providing palliative care in the health system of Iran and help policy-makers to create a future roadmap by presenting a picture of the present status. Methods: In this qualitative study, 17 semi-structured interviews were conducted with policy-makers, researchers, and managers of the centers providing palliative care in 2018-2019. Interviews were analyzed using directed content analysis based on the Public Health Strategy and framework analysis. Results: According to the WHO Public Health Strategy, palliative care challenges categorized in 13 subcategory and four main category include policy-making, program implementation, comprehensive education and drug availability. Conclusion: Providing palliative care that is currently dispersed in some centers does not meet the needs of chronic diseases. Establishing the palliative care system as one of the major goals of the health system of Iran is possible through reforming the fourfold structure of policy-making, implementation, education and drug availability. Therefore, it is suggested that authorities perform comprehensive and systematic management of challenges using foresight methods.
- انتشار مقاله: 07-07-1398
- نویسندگان: Salman Barasteh,Maryam Rassouli,Akram Parandeh,Amir Vahedian-Azimi,Rohallah Zaboli,Morteza Khaghanizadeh
- مشاهده